Review: Every Note Played

Every Note Played Every Note Played by Lisa Genova
My rating: 5 of 5 stars

I want to thank NetGalley and Simon & Schuster Canada for granting me an advanced copy of the Every Note Played book by Lisa Genova.

Lisa Genova, author of "Still Alice" and "Inside the O'Briens", delivers yet another masterpiece. Every Note Played is a novel which addresses the devastating effect of Amyotrophic Lateral Sclerosis (ALS) on a celebrated pianist and his family. ALS (a.k.a. motor neuron disease (MND) or Lou Gehrig's disease) causes the death of neurons controlling voluntary muscles. Over time, as the muscles of the body break down, someone living with ALS loses the ability to walk, talk, eat, swallow, and eventually breathe. At 45, Richard is diagnosed with ALS. His career is over and he has no one to turn to for help. Karina, his ex-wife, driven by guilt, becomes his reluctant caretaker. This endeavour is more than she bargains for, and both she and Richard are faced with very life-changing decisions.

This book will be available at your favourite bookstore on April 3rd, 2018. I recommend this book and thank Lisa Genova for writing it in the perspective of the patient and the caregiver. This was an eye-opener for me and prompted me to read more about ALS and educate myself.

According to ALS Canada: “ALS is not contagious. There is no cure for ALS and few treatment options for the majority of people living with the disease. Approximately 80 percent of people with ALS die within two to five years of being diagnosed.”

Food for thoughts:
• More than 200,000 people around the world are living with ALS.
• About 3,000 Canadians are currently living with ALS.
• Each day in Canada 2-3 people die of ALS.
• The lifetime risk of developing ALS is 1 in 1,000.
• 80% of people with ALS die within 2-5 years of diagnosis.

To make a donation to help find a cure, follow these links:
Canada: https://www.als.ca/
US: http://www.alsa.org

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